I’m transitioned to biweekly and then weekly appointments with a perinatal doctor. Scans are frequent. Something called DiGeorge’s is mentioned. But I’m still cloudy and I don’t think to google what DiGeorge’s is and then one day I do. And the other shoe drops. This disease can be horrendous- in many cases it isn’t compatible with life beyond toddlerhood. And life could be very painful.
The only way to determine if the baby has DiGeorge’s is to undergo an amniocentesis. Another surface to recline upon but this time the lights are high. The doctor explains the process and the things that could go wrong. I breath my way through it and then wait for the phone call.
During the waiting period, I fought myself to not think about the future, but that was all that I could do. What could I do to help my baby if it had DeGeorge’s? What would his life look like? Breelyn died without pain, how would I be able to handle a child who was in pain and could have a painful life and death?